Reflection is defined as the act of reflecting or the state of being reflected. This can be something such as light or an image that is reflected. Reflection can also mean serious thinking or careful consideration. Today I reflect not only on these past few years but on the entirety of my 35 years of… Continue reading Reflection
In October 2016 I was told by my rheumatologist that I was in remission from my DM. I worked so hard to get to this point and was so dang proud to be pain free. With this remission came the possibility of trying to conceive another baby. This thought was almost confusing to my husband… Continue reading How we decided to conceive
3 years ago I was experiencing my first symptoms of muscle weakness. This started out in my arms and although I had the rash, or Gottron’s Papules to be me medically correct, we assumed the arm weakness was from moving into our new home. From this point you know the rest of my DM journey…up… Continue reading The Gift of Life
Do you see this sweet thing? This is my baby who is becoming more and more a little boy with each passing day. Although I have been sick almost all of his 3 1/2 years of life with Dermatomyositis, he has been the brightest little light in my life. I am blessed beyond reason that… Continue reading What will the future hold?
Today I saw my rheumatologist for the first time since being off all of my medications. When I first arrived I actually had to check the building directory to make sure I remembered that he was on the 3rd floor. This not only made me laugh a little but it was a clear sign to… Continue reading October 6th…the day I officially got my life back!
Can it be? Is it possible? The time has finally arrived that I am no longer on any, that’s right, ANY medications! Zero, zilch, nada! I have been Methotrexate free for almost 5 weeks now, Prednisone free for 8 months, and Plaquinil free for a year. As wonderful as this is it also terrifies me.… Continue reading A little bit stronger
Today has been one of those days that I have been having phantom pains in my leg from the muscle biopsy that I had in the beginning phases of my diagnosis. Has anyone else ever had these sort pains? My surgery was 2 1/2 years ago and it still hurts sometimes! I am grateful to… Continue reading Phantom Pains